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Tuesday, November 24, 2009
Belated
A thank you to you who left messages on my last post. Especially Lee, who I want to assure that I am doing ok. To a point.
It's been a couple of weeks, the funeral was really good send off, of which my dad would have been so pleased and proud and, I would imagine, would love to have been a part of for sure.
I was comforted by the presence of so many people who cared enough and who my dad meant something to. I can't describe that. It's...surprising and warm.
I want to talk about me. But not yet. I don't want to appear...self-centred.
Suffice to say that while I am ok, I am struggling. In odd ways. I long for a protective, reassuring arm. I either have no-one to provide it or I am unwilling to accept it. It is probably the latter.
But enough for now. I miss my dad. And you few who commented, Lee, Bedshaped, Diana, maddog...I really do mean thank you. You didn't know my dad. But you know me, to a point, and I really, really do appreciate your words.
Lee - I will be ok. How are YOU?
Monday, November 09, 2009
In mourning
My dad died yesterday lunchtime.
After a long and distressing night during which I spent every minute with him, helping to ease the pain and settle him as best I could, he was given the necessary cocktail of drugs to allow him to sleep peacefully, in no pain and without agitation.
It was in this state he finally passed away. In the manner he would have wanted to - at home, with his children, in peace.
I miss him so much.
A special mention for district nurses everywhere. You do a brilliant, compassionate job. Thank you.
Wednesday, October 14, 2009
Not long now
I can sense time running out.
Cancer spreads. It spreads fast, it spreads indiscriminately. And, in the case of my father it is now in the brain. Minuscule it is, but there. Treatment commences soon, but this puts on hold chemotherapy for the liver cancer, which is now alive, awake and kicking once more.
It's a losing battle, as we all knew it would be. "Nothing's changed," my father says. He is right...only time cut more and more short.
I don't know how long is left. Will we see Christmas? Probably, though in what state I cannot say. Will we see Spring? I don't know. It feels like not. But I am no doctor. I just don't know.
Feelings of...impotence...persist. There is nothing I can do, nothing I can direct my anger at still. It's frustrating still.
My dad is increasingly frustrated and has admitted, only to me, that some days he wonders what the point is. I reeled at his words - but I could not ignore his logic.
He won't give up, I know that, but I can fully understand his thoughts and feelings. What is the point in continuing to suffer, in continuing to become less and less capable?
To be there for your family? When does being there turn into becoming a burden? What constitutes being there if you can't make it up the stairs?
I fully understand him. He is a proud man and does not want to go out like that. But nor will his pride allow him to do anything else. My frustration pales in comparison to his and I should not be so selfish. Except he knows and understands why I am so.
Remarkable man, my dad. Not without his faults, but remarkable nonetheless. He is proud of me. I hope to keep that pride by doing what is right by and for him. I love him so much.
Not long now. I still cannot imagine life without him.
Sunday, September 27, 2009
Annus Horribilus
2009. Not a great year. Not a great year at all. Dad remains ill. He is frustrated and pissed off with always lacking energy. Lacking energy to a level I can't comprehend. Making a coffee seems like too much effort to him. I wish I could do something for him. His latest blood tests have apparently come back with poor results. Which means the break from chemo we hoped he was going to get may not happen. This also scuppers a short weekend away we were going to have. All of this points my mind in one direction and it is not good. I am so, so scared of losing my old man. My dad, my hero, my friend, my safety net, my everything really. And I am SO frustrated by NOT BEING ABLE TO DO ANYTHING ABOUT IT. 2009. Not a great year. Not a great year at all. Unemployed still, with the hopes I had of making something out of it dwindling fast. Doors close and while some remain open and yet others open anew, I'm less confident than I was. The Housemate is moving out today, so that's £500+ a month gone as well. I need to make an opportunity work and I need to do it fast. But how can I concentrate when I have my dads situation hanging over me? It's HARD. Despite this...I do remain relatively upbeat. The dark moments, though mercifully brief, are, however, darker than ever. I would swap places with my dad right now. No question. Better a man that has made the most of his life be well than one that really hasn't. I love him so much. I hate 2009. Not a great year. Not a great year at all.
Sunday, August 30, 2009
Fear
While my father continues to respond to treatment he is getting more and more tired after each session and takes longer to recover each time. He has also decided to retire as work is too tiring in conjunction. Still has three months to do, but it's a decision made. One I both like and don't like. He should probably have retired a long time ago - just because he could. But he always said he wouldn't know what to do if he did. So now he has...I worry...what is he going to do? I know it is necessary but it adds to my fears and brings the finality a step closer. I hate that. It makes denial that much harder. Gradually I am having to face up to the fact that my father is dying. Gradually I am realising it is, comparitively speaking, likely to be sooner rather than later. I hate the fact that we're reaching a tipping point where a decision will have to be made on whether the fallout from the treatment is worth the effect it is having. This is a horrible, horrible disease. But I don't hate it as such. I hate the fact I'm going to lose my dad. What does it matter what takes him? But the reason I am posting after so long is the fear. The gradual but increasing degredation of my ability to deny. I am, frankly, petrified. For my dad, who I see scared now and then, and for me who cannot imagine life without him.
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When You're Gone - Avril Lavigne
I always needed time on my own
I never thought I'd need you there when I cry
And the days feel like years when I'm alone
And the bed where you lie
is made up on your side
When you walk away
I count the steps that you take
Do you see how much I need you right now?
When you're gone
The pieces of my heart are missing you
When you're gone
The face I came to know is missing too
When you're gone
All the words I need to hear to always get me through the day
And make it OK
I miss you
I've never felt this way before
Everything that I do
Reminds me of you
And the clothes you left
they lie on my floor
And they smell just like you
I love the things that you do
When you walk away
I count the steps that you take
Do you see how much I need you right now?
When you're gone
The pieces of my heart are missing you
When you're gone
The face I came to know is missing too
And when you're gone
The words I need to hear to always get me through the day
And make it OK
I miss you
We were made for each other
Out here forever
I know we were
Yeah Yeah
All I ever wanted was for you to know
Everything I do I give my heart and soul
I can hardly breathe, I need to feel you here with me
Yeah
When you're gone
The pieces of my heart are missing you
When you're gone
The face I came to know is missing too
When you're gone
The words I need to hear will always get me through the day
And make it OK
I miss you
Your Sweet Voice ~ Reindeer Section
Your sweet voice
Lets me know there is a choice
Please me slow
Oh, Much more slowly than that
And when we danced
We danced warm cheek to cold cheek
A sideways glance
I knew you were looking at him
I can't call you a friend
Cause when you left me here
You left me here to die
Don't worry I wont call you again
Cause when I take a hint
I take it pretty hard
And when you broke my heart
you broke it into shards of glass
The telephone yells out
At me to wake
I won't be blamed
For someone else's mistakes
It's your sweet voice
Sounding cheery and warm
It breaks my heart
But I summon up all my charm
Can I call you my friend?
It's been so
Since we've talked
and I miss you
Don't worry I'm over you right now
So my feelings wont get in the way of it
Oh, I miss the way we talked
about the little things
In The End ~ Linkin Park
It starts with
One thing, I dont know why
It doesnt even mather how hard you try
Keep that in mind
I designed this rhyme
To explain due time
All I know
Time is a valuable thing
Watch it fly by as the pendulum swings
Watch it count down till the end of the day
Clock ticks life away
Its so unreal
You didnt look out below,
Watch the time go right out the window
Tryn to hold on
Didnt even know, I wasted it all
Just to watch you go
I kept everything inside
And even though I tried
It all fell apart
What its meant to be
Will, eventually be,
A memory of a time,
When I tried so hard and got so far
But in the end, it doesnt even matter...
I had to fall, to loose it all...
But in the end, it doesnt even matter...
One thing, I dont know why
It doesnt even mather how hard you try
Keep that in mind
I designed this rhyme
To remind myself
How I tried so hard...
Dispite the way you were mocking me
Acting like I was part of your property
Remembering all the times you fought with me
Im surprised it got so far
Things arent the way they were before
You wouldnt even recognize me anymore
Not that you knew me back then
But it all comes back to me
In the end...
You kept everything inside
And even though I tried it all fell apart
What it meant to be, will
Eventually, be a memory of a time
When I tried so hard,
And got so far,
But in the end, it doesnt even matter
I had to fall, to loose it all
But in the end, it doesnt even matter
Ive put my trust in you
Pushed as far, as I can go
For all this
Theres only one thing you should know
Ive put my trust, in you
Pushed as far as I can go
For all this
Theres only one thing you should know...
I tried so hard,
And got so far,
But in the end, it doesnt even matter
I had to fall, to loose it all,
But in the end, it doesnt even matter
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